CASE STUDY

Equity in Action: Nemours Children’s Health Delivers on Its Patient Experience Promise

CASE STUDY

Culture of Ownership Drives Remarkable Gains in Patient Experience

EXECUTIVE SUMMARY

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Executive Summary

How a commitment to equity, data, and partnership drove measurable improvement

Nemours Children’s Health, a nationally recognized pediatric health system, embarked on a multi-year initiative to improve the patient and family experience—for all patients and families.

In partnership with NRC Health, the organization used data to identify a key driver of avoidable healthcare use: a lack of clarity around post-visit instructions, as captured in the survey question, “Did you know what to do if you had questions after your visit?”

While the overall score for this item initially appeared average across the board, a deeper analysis revealed significant disparities among racial, ethnic, and language groups. By breaking down the data and acting on what they learned, leaders at Nemours designed and implemented a system-wide strategy focused on clear communication, equitable care delivery, and frontline engagement.

Key outcomes include:

Key outcomes include:

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Over a three year period, Nemours improved the safety of care by helping children and families understand how to get their questions answered.

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Improvement was accelerated through shared insights. The greatest gains came when Nemours shared NRC Health’s demographic breakouts directly with care teams—highlighting the power of transparent, actionable data.

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Language-based disparities were reduced year over year. Focused tools like interpreter access and multilingual resources led to measurable, sustained improvement for Spanish-speaking families.

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The risk of ED return visits was cut in half. Families who understood post-visit instructions were more than twice as likely to avoid return ED visits (3% vs. 6.8%).

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Racial/ethnic experience gaps decreased. Within one year, every demographic with an n of 1,000 or more saw significant improvement from baseline.

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Consistent, reliable, systemwide excellence was achieved. Experience score variation across locations dropped from 8 points to just 1, ensuring more reliable and stable care for every family.

The success of this initiative offers a blueprint for other healthcare organizations that are seeking to advance health equity and improve outcomes, not just by measuring experience, but by making it meaningful.

This case study explores how Nemours Children’s Health partnered with NRC Health to move beyond measurement, using data to drive equitable experiences, empower clinicians, and ensure that every family leaves with clarity and confidence.

Peggy Greco

“We didn’t identify the problem until we examined the patterns across demographic groups. That’s the power of partnering with NRC Health—seeing what’s beneath the surface and acting on it.”

—Dr. Peggy Greco, Chief Patient Experience Officer, Nemours Children’s Health

Keep reading to discover actionable insights your organization can apply to deliver more equitable, consistent, and meaningful patient experiences.

Ready to connect? Reach out to NRC Health to start your journey to Human Understanding® today.

Background: Whole-Child Health, Systemwide

Whole-Child Health, Systemwide

Nemours Children's Health logoNemours Children’s Health is a nationally recognized pediatric health system serving families across 85+ locations in four states, with major operations in both the Delaware Valley and Florida. Founded by philanthropist Alfred I. duPont, Nemours was built on the belief that “everyone has a responsibility to reduce suffering in this world.” Today, that vision translates into a robust, multi-layered commitment to health equity, medical excellence, and what the system calls going “Well Beyond Medicine.”

Through its comprehensive care network spanning primary care, specialty services, urgent care, and two free-standing children’s hospitals, Nemours delivers care shaped by the understanding that up to 80% of a child’s health is determined outside of the clinical environment. Social, behavioral, economic, and environmental factors are all considered in the organization’s patient experience strategy.

Whole-Child Health, Systemwide

“We’re not just treating a condition; we’re treating a child, within a family, within a community,” said Dr. Greco. “If we want to improve child health outcomes, we must also impact the environments where children live and grow.”

The system’s diverse patient base—especially the high percentage of Spanish-speaking families in Florida—prompted a deliberate effort to align clinical staff demographics and language competencies with the populations they serve. This groundwork set the stage for a successful, data-driven patient experience improvement initiative.

The Challenge: Disparities Hidden in Plain Sight

Disparities Hidden in Plain Sight

In March 2020, amid the COVID-19 pandemic, heightened awareness of systemic inequities, and increasing national focus on health equity, Nemours Children’s Health began its partnership with NRC Health. At the time, the organization was already deeply committed to advancing equity and whole-child health. But it lacked the tools to examine patient experience data through the lens of identity.

That changed quickly.

With the help of NRC Health’s custom reporting capabilities, Nemours began breaking out patient experience scores by race, ethnicity, and language—well before these features were widely available on most platforms. What they uncovered underscored the need for immediate action.

Disparities Hidden in Plain Sight

Although the systemwide score for the question “Did you know what to do if you had questions after your visit?” ranked in the 60th percentile compared to peers, more specific data told a different story:

  • The top box score for this survey item was 15 points lower for Spanish-preferring families than for English-preferring families.
  • There was significant variation in racial/ethnic groups on the top box score for this survey item, with 21 points between the highest top box score (patients identifying as white) and the lowest top box score (patients identifying as Korean).

Further, knowledge about how to have questions answered also impacts return to the ED. Patients are more likely to return to this care setting when they don’t know how to have their questions answered—and this difference is heightened within some racial/ethnic groups.

  • Spanish-speaking families had a 9.2% emergency department return rate within 48 hours when they didn’t feel clear on next steps—compared to just 3% among those who said they did know what to do.
  • Black-identifying patients showed an 8.6% return rate under similar circumstances.

The disparities in knowing what to do following a visit weren’t visible in the aggregate. But through NRC Health’s support and readiness to customize reporting, Nemours found a measurable and crucial equity gap tied directly to patient quality and safety of care and set out to address it.

The Solution: A Systemwide, Equity-Focused Rollout

A Systemwide, Equity-Focused Rollout

Nemours responded with a multi-year, organization-wide initiative grounded in empathy, equity, and evidence. The goal: to ensure that every patient and family—regardless of background, language, or care setting—leaves with a clear understanding of what to do next and how to get their questions answered.

This was not a one-size-fits-all campaign. Instead, Nemours activated an approach that spanned every level of the organization, adapting tools and tactics to fit specific roles, settings, and patient needs.

Key strategies included:

Language Identification and Interpretation

Staff proactively identified preferred languages, flagged interpreter needs, and ensured real-time access to in-person or virtual interpretation. Barriers to consistent interpreter usage/translation capabilities were identified and addressed systemwide.

Pre-Visit Preparation

Rooming staff introduced question cards in English and Spanish and encouraged families to write down concerns while waiting, empowering them to ask the right questions during the visit and minimizing the risk of there still being questions after their departure.

Discharge Communication Tools

Clinics deployed customized handouts, business cards, and app-based messaging, all in families’ preferred languages. Some departments even affixed neon-colored stickers with contact information directly onto paperwork.

Teach-Back and Clarification

Clinicians were coached on using teach-back techniques in order to ensure comprehension of recommendations prior to the patient and family’s departure.

Communication/Confirmation

Check-out staff asked families open-ended questions to confirm their understanding of how to get questions answered, such as:
“If you got home and weren’t sure about your child’s medication, what would you do?”

Technology Support

Epic-integrated tools such as MedActionPlan Pro enabled visual, multilingual medication summaries. Leaders also leveraged Nemours KidsHealth.org discharge instructions—available in three languages—to reinforce care plans.

A Systemwide, Equity-Focused Rollout

“This went beyond a patient experience initiative; it was also a patient safety initiative,” emphasized Dr. Greco. “That’s how we increased buy-in.”

Results: Outcomes That Matter

Outcomes That Matter

Over the course of three years, Nemours achieved measurable, sustained improvements, proving that a clear focus on equity and communication can drive both positive patient experiences and health outcomes.

  • Knowledge of how to get questions answered increased steadily, with a gain of over 4 points in top-box score.
  • The largest gains came when teams saw the data. In 2021, when Nemours shared demographic-specific scores from NRC Health’s platform directly with care teams, the system saw its most significant year-over-year improvement.
  • Language-based disparities steadily declined. Spanish-preferring families saw rising experience scores year after year, thanks to more accessible interpreter services, translated materials, and a consistent emphasis on communication clarity. Although both groups improved their scores, Spanish-preferring families saw a steeper rate of improvement, leading to a lessened disparity.
  • Racial and ethnic disparities were reduced dramatically in just one year. Top-box scores for Black-identifying patients rose from 77% to 81%, and for Mideast Indian–identifying families from 64.3% to 72.3%.
  • There was also a decrease in top-box score variation by racial/ethnic groups with 10 points between the highest and lowest top box scores, a decrease from the 21-point spread noted in 2021.
  • Systemwide experience consistency improved dramatically. The variation between the highest and lowest annual top-box scores for the entire health system dropped from 8 points in 2020 to just 1 point in 2023, indicating a more reliable experience across patients and families, as well as clinics and regions.
  • The risk of emergency department returns was cut in half. Families who felt informed after their visit had a 3% ED return rate—compared to 6.8% among those who didn’t.
Outcomes That Matter

Sustaining Success: The Maintenance Phase

Though the original three-year initiative has reached a point of stability, its principles and practices continue to shape everyday care at Nemours.

  • Clinics still use the core tools. Question cards, multilingual discharge materials, and teach-back prompts remain embedded in standard workflows.
  • New support was added to sustain progress. In inpatient settings, Nemours introduced a centralized triage line for families unsure of whom to contact after discharge—an especially important feature in complex cases with multiple specialties.
  • Future goals build on past success. The organization’s current enterprise goals emphasize individualization and Human Understanding, continuing the evolution of the work that began with a single survey question.

A Vital Partnership

A Vital Partnership

From the very beginning, NRC Health served as a strategic partner in Nemours’ pursuit of health equity and patient-centered care. The collaboration began in March 2020, just as the COVID-19 pandemic intensified and healthcare systems nationwide were grappling with unprecedented challenges. NRC Health rose to the occasion, offering both the flexibility and the innovation Nemours needed to act.

“Our NRC Health team didn’t just give us tools; they gave us insight,” said Dr. Greco. “They were a crucial partner in helping us turn data into meaningful change.”

A Vital Partnership

Key contributions from NRC Health included:

Key contributions from NRC Health included:

Custom Reporting That Revealed What Others Missed

Before “scores by demographics” were a standard capability, NRC Health’s team created a custom report—Scores by Background—which allowed Nemours to analyze individual survey items by race, ethnicity, and language. This breakthrough surfaced disparities that were otherwise hidden in aggregate data.

Support for Equity-Focused Innovation

NRC Health worked closely with Nemours to co-develop a Survey Fairness Evaluation, which was distributed to the organization’s Virtual Family Advisory Council. Their feedback informed adjustments to both measurement strategies and communication practices, ensuring that the data being collected was both inclusive and actionable.

Real-Time Visibility for Clinicians

At the height of the initiative, NRC Health helped Nemours make “Did you know what to do?” a team-level metric. By integrating the score into clinician dashboards and summaries, they gave providers immediate visibility into how they were doing—turning survey feedback into a real-time coaching opportunity.

Consistent Partnership and Responsiveness

Throughout the three-year journey, NRC Health remained deeply engaged. From building custom tools to analyzing trends and sharing national best practices, this ongoing collaboration ensured that Nemours could evolve its approach as the initiative matured.

“This partnership showed what’s possible when you combine the right data with the right mission,” said Dr. Greco. “It’s been transformational for our teams and for the families we serve.”

Lessons for Other Organizations

For healthcare leaders seeking to improve equity, clarity, and patient experience outcomes, Dr. Greco offers practical guidance rooted in real results:

Make it everyone’s initiative.
The success of the work at Nemours hinged on broad, cross-functional involvement. From access teams and front-desk staff to nurses, physicians, and executive leadership, every role had a part to play.

“Shared goals need shared ownership,” said Dr. Greco. “This couldn’t live within the patient experience department—it had to belong to the entire system.”

Focus on what truly matters.
Nemours deliberately shifted away from generic metrics like “likelihood to recommend,” in favor of more actionable measures with direct implications for safety and outcomes.

“If it improves understanding, prevents harm, and reduces confusion, it’s meaningful,” Dr. Greco explained. “And if it’s meaningful to patients, it will be meaningful to staff.”

Stay the course.
Meaningful change doesn’t happen overnight. Nemours’ most significant gains came in year two, and systemwide consistency didn’t emerge until year three. Throughout that time, leadership remained committed even when improvement was gradual.

“Change that lasts takes time, often years,” said Dr. Greco. “If you give it the time, you’ll hardwire the impact.”

Show the human impact.
One of the most powerful engagement strategies was helping teams see how the initiative could change the experience for a single child or family. That storytelling helped turn metrics into mission.

“If you can describe how an initiative changes one child’s life, you’ll get clinical buy-in,” Dr. Greco said. “That’s where transformation begins.”

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©NRC Health. Select images featured in this case study have been provided by Nemours Children’s Health and are used with their permission.